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I was diagnosed with epilepsy at 21 years of age and fluctuated between many medications. When I decided to have a child, at the age of 31, I was on three medications and having nocturnal seizures. I did not have any difficulty getting pregnant. The only symptom I was aware of related to my medications, was the chance of a cleft palate at birth. There wasn’t much research on my other medications but I decided to have a baby. I was very scared. I would love my baby no matter what but did not want to be the cause of any health issues. I was considered high risk during my pregnancy and had monthly check-ups. I continued to have nocturnal seizures and my doctor at the time would just alternate my medication dosages. I did have gestational diabetes but overall I had a pretty easy pregnancy. My son was born only two weeks early, gave me 32 hours of labor but was born nice and healthy! 6 months after having my son, I had a grand mal seizure and began to see a new doctor. He told me he couldn’t believe how many medications doctors switched me through throughout the years. He decided to try Onfi with me but said if it didn’t work it was time to consider surgery. Well, this doctor changed my life. After 11 years of suffering I finally found something that worked. I have been seizure free for 8 years now. I consider my son my miracle baby. Onfi changed my life; however when I started it it had just recently become cleared to use in the United States. It is considered an addictive drug and if taken during pregnancy can harm the baby. Three is also the chance the baby could be born with the addiction. My choice was to stay on Onfi and stay seizure free; however, although I had planned on having more children, I did not want to take that risk. At times, I feel guilty because I always wanted my child to have siblings but he is the greatest blessing I could have ever been given and the most loving son any mother could ever have.

Lamotrigine levels drop in pregnancy making your seizure threshold higher

I was considered a high-risk pregnancy from the beginning and was referred to an speciality OB at a hospital that had a trauma unit and a NICU. My local GYN said it was best to go there so that if anything would happen me and my baby wouldn’t be separated. My first ultrasound was at 16 weeks. Monthly after that, I went for fetal ultrasounds and monitoring so that my Dr could watch for and detect if any fetal distress was ever present. allows. This monitoring also monitored my baby’s organ development, especially his brain function. My doctor always monitored my lab work and blood pressure to try and make sure I didn’t have a seizure while pregnant. We talked about the delivery and how hard that would be on my body. I really wanted to try for a vaginal delivery. At 37 weeks my blood pressure spiked and I was admitted to be induced. I was given Cervidil vaginally to induce vs. Potosin. My doctor said Potosin was not good for someone with epilepsy. But after 76 hours of trying to be induced, my dr advised a C-section and my son was born healthy.

My 1st I had over 30 gran mals with (tonic clonic seizures). I was so scared to lose him each and every time. When I would go to hospital acting like they didn’t care about it/ it wasn’t a big deal. My son will be 3 in March 2026. He is level 2 autistic. My son did come out needing help with oxygen. He was also very lethargic due to medication! My 2nd I have seizures everyday(smaller seizures) and I had 3 gran mals with her but more so my smaller seizures were so severe.. She needed help with some oxygen as well when she came out. She was also very lethargic but she was more lethargic than my son was and she just would sleep… she’s 4 months now and she’s healthy! Overall my babies are healthy and I am so blessed and thankful for them! My 2nd I had to also go un medicated due to they could not find my spine.. they pricked my back and moving the needle all around and gave up because I screamed about a long needle being poked to many times and moving it all around like it’s a small needle. Well they said they couldn’t find my spine due to the lamtragine. My 1st baby I had the epidural. My 2nd nothing. I almost went into a tonic clonic seizure during birth due to the stress on my body. Luckily I did not!

Important to note that the ASD/VSD is something that happens to babies with mothers not taking medication. It can be fairly common. No issues during pregnancy

I was put on lamictal when it had only been in the UK for 6mnth. I was one of the first to fall pregnant on this new drug. My son was born 16.9.1994. Because of this research was still being done. They kept my son's umbilical cord for this research.

I took Lamotrigine throughout both of my pregnancies. My neurologist from the Mayo Clinic said it’s the safest seizure medication for pregnancies. I still had seizures throughout my pregnancies and he would go up every time I had a seizure so by the end of my second pregnancy I was getting dizzy so I said no more kids. Thankfully I have a healthy boy and a healthy girl!

My frist baby I started to take epilepsy I have 4 kids today all healthy I had lot off epilepsy with my pregnancy but that medication help me

I'm a 30 year old mum to a beautiful 4 year old daughter. I was diagnosed with epilepsy aged 13 from the start I was advised if I wanted children I should plan for them, as I was told I had higher chances of them having conditions such as down syndrome and cleft lip. In 2019 myself and my boyfriend decided to plan having a child we decided because of all the planning tests extra scans tests during the pregnancy I only wanted 1. In 2021 I fell pregnant with my daughter (she had until her due date/hospital appointment until we gave up). Unfortunately it was the pandemic. We was treated well and yes I had to have extra tests, scans etc and all the way though baby was perfect. However during this time all the information I was given was US based (I live in the UK) which then scared me as how can I trust a system I know nothing about. So from then on I had to trust my gut, from the information I've been given over the years. Thankfully everything went well until I had to have this glucose test thing. I had an experience I've never had before I passed out during this test, again everything was fine. I didn't have a seizure at all throughout my pregnancy. Longest time ever. My labour was simple although I was told to possibly be prepared for a c-section but it wasn't needed. I don't remember much in all honesty. She's now 4, happy, healthy and an attitude to match the family. It's not as scary as you might think I think the best advice I was given was to plan, plan, plan. Then you can have all angles covered. So that's my advice to you

In my 2nd trimester, I had one gran mal that I quit breathing and started turning blue between 7-12 mins and had to have CPR. During that one I knocked myself out on the lip of a tile shower and had locked the bathroom door and my husband almost had to break the door down to get to me. Approximately 1 month after the first one, I had another severe one and quit breathing again and was hospitalized put on a baby monitor for 3 days. Thankfully most of the rest of the pregnancy itself was safe, til we got to my 36hr labor/delivery. They were so scared I was going to have a seizure and crush him, that by the time he did come, I had 6 epidurals and couldn't even feel the pressure to push.

Medication blood levels really plummeted at 20 weeks.

Large birth weight, even when delivered one week early. Born tongue tied.

I was more fearful of what could happen than what actually happened. Before I even started trying, I met with my neurologist and discussed my fears. She explained the medication I’m already taking is about the safest I can be on to be pregnant and it would be more dangerous for me and the baby if I went off medication. I stayed on my medication but they changed up the dosage based on my levels. They checked my levels every few weeks all the way through the pregnancy.

I was blessed. My pregnancy went really well. I have Focal and Catamenial (Hormone) Epilepsy and my body/brain was happy with the rise in Progesterone. Due to seizures being triggered by stress (I get Grand mal seizures) my neurologist arranged with my OBGYN for me to have induced labor so that they both can be there at the birth and that I can be monitored. I requested epidural for pain management because pain is a "stresser". So I felt no pain. The labor went well and my baby girl is healthy.

I have had seizures since I was 10 and have always been on multiple medications. I was followed closely by a Dr. through my pregnancies I was taking 300mg twice a day of lamictal 175mg of lyrica twice a day, metoprolol 50MG twice a day and Amitriptyline 50MG twice a day. They increased my medication through out my pregnancy to make sure I wasn’t going to have seizures. They only thing my Dr said about Lamictal is that it could cause the baby to have a cleft palate but both my kids are fine with no side effects of my medications.

This was my 2nd pregnancy and 1st with levetracetam. In both pregnancies 2nd trimester was the worst, with this pregnancy having 1 tonic clonic seizure a week in this period. When I started to take the medication morning, noon and night (lamotrogine morning and noon, levtracetam at night) the hormone effects and seizures reduced significantly. Spreading them out seemed to work more effectively than the usual twice daily recommendation.

fairly easy pregnancy, no morning sickness. I was again advised to have an induction if I went beyond my due date. that was scheduled for the day before my due date, although I think labor would have started close to that anyway; I had lost the mucus plug the day before the induction. Baby girl, 8lbs 5oz. She's now four, on the smaller side around 25th percentile growth charts, but she dr isn't concerned as she's staying along her growth chart and growing. She knows all her letters and can count to 35.

I had a fairly easy pregnancy, no morning sickness, no breakthrough seizures. wasn't expecting this pregnancy, so didn't take the folic acid until after I knew I was pregnant. I only needed one appointment with maternal fetal medicine, that dr cleared me to continue with my local OBGYN. OB recommended an induction at 39 weeks because of potential additional complications if pre-eclampsia (increased seizure risk for general population) were to happen; and the longer the pregnancy goes on the higher the chances of pre-eclampsia. No gestational diabetes, no pre-eclampsia. Baby boy born 8lb 5oz, about 19 inches.

Being pregnant while managing epilepsy with lamotrigine was both challenging and rewarding. I started my pregnancy taking 100 mg in the morning and 100 mg at night, but as my body went through hormonal changes, my neurologist closely monitored my lamotrigine levels with monthly blood draws. Over time, my dosage had to be gradually increased up to 250 mg. The higher dose left me more tired than usual, and my memory took a noticeable hit, which sometimes made day-to-day life harder. Still, I reminded myself daily that these adjustments were to keep both me and my baby safe. In the end, all the effort and careful monitoring paid off — my sweet baby girl was born healthy, and that’s what mattered most. If you have epilepsy and are planning to get pregnant, the most important first step is to talk to your neurologist. They can help find the safest medication and dosage for you and your baby, ensuring you both have the best possible start.

We had to put cushions all around the front room because of how frequent my seizures became, I smashed out my front teeth but my baby was fine. My children are now 14 & 13. My youngest has ADHD though im not sure if thats anything to do with medication.

My seizures became more frequent so we took alot of precautions with anything that could make me to tired.

I am having 3-5 spacial seizures a week that makes me forget everything. My whole pregnancy though it actually stopped them. I seen a high risk doctor, which im sure all of you will as well. And it was very important to keep them. Now after my pregnancy my body did some kind of change, obviously through the whole pregnancy phase, and I ended up having one that ended up with me being in the hospital for 3 days. But a side note dont listen to doctors who tell you you cant breast feed. I was told by the one I had that I wasnt allowed to. Then I got pregnant with a second and was asked why I didn't and explained and he said you do know what your baby is swimming in and absorbing in your stomach right? He told me it would have been perfectly fine. Just an outsiders looking in perspective that missed a great opportunity bc one neurologist told me no and the one who told me yes I unfortunately miscarriaged

I seen my neurologist every trimester during my pregnancy and had my levels checked frequently. I did not have to increase my medication as I always stayed in the therapeutic level. I had an elective c section as I was nervous about having a seizure while giving birth. I never had any seizures throughout my pregnancy and was seizure free for 5 years prior. I'm currently 12pp and have a healthy baby and breastfeeding

My first pregnancy I was on only 100mg twice daily and being pregnant increased the risk of seizures, I did have a seizure while on the lower dose, but now that I'm on a high dose I am seizure free. Both my baby's are healthy

My pregnancy was high-risk, but I was healthy throughout. I stayed in very close contact with my epileptologist. However, after my son was born, my doctor cut my dosage in half for fear that after my hormones dropped I would have negative side effects. I had no control over the dosage, because I was a hospital patient, despite being unsure if it was a high enough dosage for me. I had a partial seizure with hallucinations a few days after birth. My son was in the NICU, and I had extra stress, which likely did not help. I also had gained weight, which probably did not help either. Luckily, I was in the hospital so was able to get a blood draw ASAP. I immediately added another 100mg. My son is 3.5 years old now, and I have stayed at 700mg since. At my most recent blood draw a few months ago, my levels are still right in the middle.

Monthly lamictal draws were essential. Having a plan to ween down post pregnancy was also important. Additionally, I nursed my son for a year after birth no issues. He is 7 years old now and perfectly healthy

This pregnancy was my second and completely unexpected. I was approximately 12 weeks pregnant at my first kiddos birthday. Again I was not aware that anti epileptic medications decreased the efficacy of birth control. This pregnancy was a healthy pregnancy with a healthy birth epidural and all. I did have a few seizures during this pregnancy but I had a one year old that didn’t sleep also. She is two now and our only problem has again been ear infections but ear tubes fixed the problem. She is appropriate developmentally for a two year old. Walks, talks and plays with all the other children. She is a fast learner and knows what buttons to press. I personally have had more trouble after this pregnancy. Around 9 months I began having more seizures than I’ve ever had however I had many large life stressors that could have been a huge cause as well. Two children under two is no joke also!

My first little one will be four soon. I had a great pregnancy and normal birthing experience, epidural and all. At the time it was not widely known that anti epileptic medications decreased the efficacy of birth control. Luckily I was already taking the folic acid that is recommended for women of child bearing age. I had been seizure free for about a year at the time of this pregnancy and remained seizure free until about three or four months after baby was born. She will be four soon and so far has met all her “milestones” and is what I would consider a normal kid. She is active, makes friends, talks non stop and her only true problem has been ear infections but that runs in the family.

Ciąża prawidłowa, brałam tylko Lamitrin I kwas foliowy. W 7 miesiącu miałam napad duży ale bez wpływu na ciążę.

Lekarz zalecił Lamotrix jako najbardziej sprawdzony. Keppra jednak była lepsza dla mnie i wolałabym przy niej zostać.

Nie stresować się znaleść dobrego ginekologa który zawsze jest pod telefonem oraz neurolog i wszystko pójdzie dobrze

Ciaza to piekny czas, ale i obaw. W przypadku epi mamusiek warto zwrócić uwagę na regularność leków. Żeby ta dawka była cały czas w organizmie. Mdłości na początku ciąży, a leki. Warto zaopatrzwc się w czopki przeciwwymiotne. Ja dowiedziałam się o nich w 2 ciąży. Warto robić stężenie leku we krwi. Przyrost wagi daje swoje i hormony również. Warto robic wszystkie badania

DRAMATYCZNA - a o ironio nie przez padaczke, tylko ciąża poprzestawiała mi geny i jestem nieszczęśliwa posiadaczka cukrzycy typu 1, doprowadziło to do stanu śpiączki cukrzycowej, temperatura ciala 32°, mąż wróciłby 30min później do domu i juz by zastał nas martwych, przykre ale prawdziwe słowa ratowników+ nadciśnienie ciążowe zagrożone rzucawką) zwiększyli mi dawkę leku do 1.5tabl ale możliwe że za mało, startowalam z waga 55kg, skończyłam na 95kg, 2 ataki mialam, po pierwszym ktg w szpitalu czy wszystko okej, drugi juz w szpitalu, wtedy od razu cesarka na CITO z relanium itp bo spadlam z łóżka, leżałam tydzień przed porodem i tydzień po

Ciąża minęła bez ataków, była przenoszona. Bardzo długo zwlekano z rozwiązaniem, w końcu zapadła decyzja wywołania porodu. W trakcie niego miałam atak z utratą przytomności wtedy dokonano cesarskiego cięcia. Syn przez lata wykazywał dużą wrażliwość na dźwięki i dotyk. W wieku 8 lat zdiagnozowano u niego nadwrażliwość sensoryczną, uważa się, że lek NEUROTOP nie powinien być mi podawany, to cud, że dziecko urodziło się zdrowe neurologicznie jedynie z zaburzeniami sensoryki.

Warto w czasie trwania ciąży mieć conajmniej 3 wizyty u neurologa w związku z wzrostem masy ciała oraz skokami hormonalnymi , najlepiej badać poziom leku we krwi żeby mieć pewność że wszystko jest w porządku. Ja niestety o tym nie wiedziałam .