First 50 Entries on EpiLinked - Insights and Findings

June 15th, 2025
First 50 Entries on EpiLinked - Insights and Findings

We're thrilled to announce that EpiLinked has reached its first milestone: 50 pregnancy entries in our database! This is a significant achievement for our community, and we want to share some interesting insights and patterns we've observed from these initial contributions.

Key Insight: Medication Blood Level Monitoring

A key insight from our entries is the importance of regular monitoring of medication dosage levels in blood during pregnancy. Many women reported needing dosage adjustments due to weight gain and physiological changes. Additionally, several entries mentioned the use of antiemetic suppositories to manage pregnancy-related nausea, which helped maintain consistent medication levels by preventing vomiting after oral medication intake.

Medication Patterns

Among the first 50 entries, we've noticed some interesting trends in medication usage during pregnancy:

  •  Lamotrigine & Levetiracetam emerged as the most commonly used medication, with approximately 30% of entries reporting its use.
  •  Approximately 40% of entries reported using multiple medications concurrently.

Pregnancy Outcomes

The data on pregnancy outcomes has been particularly encouraging:

  •  Over 85% of entries reported healthy births with no complications.
  •  Among those using monotherapy (single medication), the healthy birth rate was slightly higher at 90%.
  •  Most reported complications were mild and temporary.

Community Engagement

We've been impressed by the level of detail and openness in the shared experiences:

  •  Nearly 70% of entries included detailed comments about the pregnancy journey.
  •  Several entries mentioned the importance of close monitoring and regular consultations with neurologists during pregnancy.

What's Next?

As we continue to grow, we aim to:

  •  Develop more detailed analysis tools to help users find relevant experiences.
  •  Expand our reach to more woman and beyond.
  •  Reach more users through targeted awareness campaigns and social media outreach.
  •  Gather more comprehensive data to provide even more valuable insights for women with epilepsy.
  •  Establish partnerships with medical institutions, epilepsy organizations, and patient advocacy groups to enhance our impact.

We're deeply grateful to everyone who has shared their experiences so far. Each entry contributes to a growing resource that helps women with epilepsy navigate pregnancy with more confidence and information.

If you haven't shared your experience yet, we encourage you to join our community and add your story. Every entry matters and contributes to our collective knowledge.

Thank you for being part of this journey with us!

— The EpiLinked Team