EpiLinked is a platform for people living with epilepsy to share their treatment and pregnancy experiences. Our mission is to create a growing, structured database of real-world experiences while fostering a supportive community.
We collect structured, self-reported data including medications, dosages, seizure frequency, and pregnancy outcomes. This forms the foundation for insights, community support, and research.
Please note: individual entries are visible to the public and may appear in search engines. Do not include personal identifiers such as your name, address, hospital, or exact location. Your privacy matters, but public visibility means you should share only what you are comfortable with.
By sharing your experiences, you help others learn from real-world stories. Each entry, comment, and observation enriches the collective knowledge and supports others navigating similar challenges.
Aggregated data is used for research, but individual entries remain publicly viewable. Always share responsibly.
— The EpiLinked Team